Skip to main content

It’s not just me

I’ve had a little time to reflect on this next post, I’ve just had another stint at the Royal Glamorgan all inclusive weight loss spa, I had to have an operation to drain another collection of goo from my side caused by the drain from the previous collection of goo. I know, attention seeking again!

During this time, David (my rather wonderful husband) has been running around like blue arsed headless chicken after me and Jack (my equally rather wonderful son). 


Cancer isn’t just affecting me, it’s got its grip on everyone around me too. My nearest and dearest are caring for me in so many ways. Making sure I have clean clothes, that the shopping is done, that my meals are cooked and I’m fed, that I’m supported emotionally, that the house is clean and I’m taxied backwards and forwards to appointments. Friends are checking in on me and helping run Jack back and forth to various clubs when David or my Mum are at work. My Sister is keeping me grounded and reacts as only a sister can when I overreact to things - which is more often than I’d like to admit.


My work has also been affected, my role has had to have a replacement - although I am glad in a way as I’ve made a new friend in her and she was very supportive while I managed to work part time. I know I’ve left the company in safe hands. In fact, everyone there has been wonderful and kind.


So it’s not just me, this fucking cancer has touched everyone around me, and that makes me really cross. Like, crossing my arms, stamping my feet and screaming cross. I try not to dwell on it too much, but it does get to me. That’s when Diojee proves he’s a very good listener and a comfort. The cat gives no fucks.


I’ll end by saying a massive thank you to everyone, I couldn’t have managed the last 3 years without you. I am truly ever grateful. 💚💙💚

Comments

Post a Comment

Popular posts from this blog

The one I didn't want to write

Well, I’m not sure how to write this one.You all know I’ve had a pretty rough start to the year. In the past month or more however, the pain has really ramped up. This, along with the dodgy arse explosions and absolutely no energy, meant my scan was brought forward and treatment was delayed. A week later a very frank discussion was had with my lead oncologist. We all know that my cancer is incurable, however we’ve never put a time frame on that. Very much a ‘treat it till we can’t’ scenario. This time was different. Although the scans show the disease as stable, my blood work and progression of symptoms show a different story. My cancer is weird, and doesn’t behave like ‘normal’ cancer. Bowel cancer likes to move to other organs, mine hasn’t done that. This bastard tumour has been unpredictable from the get go. So with trepidation I asked 12 months? I was answered with a sad shake of the head and the answer “probably less”. Maybe 6-12 months. To be honest we were expecting this kind of...
Post a Comment
Read more

Shit storm in a teacup

OK, I’m a bad blogger, I’ve not written anything in aaaaages. I’m not sure I have anything to write about now to be perfectly honest, but I felt like I needed to write something - d’ya know what I mean? No? I’ll carry on anyway. By and large, the combined drug combo of Bevuzzzzzzimab-or-something-or-other and Lonsurf has been keeping my tumour in check. Not without incidents though. My constitution being all delicate (like a bomb, not a flower) has meant that every so often I’ve landed up in hospital. Most recently, I started 2025 2nd Jan, with a 17hr stint in A&E needing blood because my HB levels were in my boots and I had a cold. Having a cold is normally a run of the mill event for people with an immune system, however as my immune system is as elusive as the ruddy Scarlet Pimpernel it floored me. A hot toddy wasn’t quite going to cut it. The hospital also has to assume that you, as a cancer patient, have Nutropenic Sepsis, until tests show that you don’t. I was in hospital aga...
Post a Comment
Read more

2024 Update: It's been emotional

Photographic evidence of 2 bored people in a waiting room Hello! Happy New Year! Is it still ok to say that in May? I’m saying it anyway, why not eh? My last post was in September 2023, and well, quite a lot has happened. Quite a lot I wasn’t ready to write about, but I was in hospital and bored when I started writing this, so here goes. Please note this is a long post and is NOT MANDATORY reading, we’ll still be friends if you don’t feel like reading on.  A little aside which might amuse you is that back in November ‘23 we discovered that I’m sensitive to a new brand of IV steroid that the buyers in the NHS have bought. “How do we know that?”  I hear absolutely nobody asking, but as you know, I like to over share. Before the immunotherapy drug is administered, I have a lil’ pre-med cocktail of Steroids, Antihistamine, and Paracetamol to prevent a reaction. The steroid used thus for the past 18 months of treatment has been a powder which the nurses mix themselves with saline a...
Post a Comment
Read more